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Phil32

Member
Oct 28, 2017
4,568
Hi hope your doing well, thanks for sharing, I confess I read your post and I had to double take as it almost perfectly reflects my own story.

I'm 33 been diagnosed on the asperger side of the spectrum, I been off work for over a year dealing with anxiety, depression and ibs. I'm trying really from ground up to learn basic life skills like cooking and DIY and just normal things to help me be safe and secure.

I'm doing a lot of work on building self confidence and trying not to get overwhelmed with people and life. I really hope one day I will be able to go back to work in a job more suitable to me. as I think the routine was really good, but the high stress environment was to much for me to cope. But its a long road ahead.

I wish you the best with traveling the road to building more self confidence and getting back to work.
I sort of feel like I'm starting from scratch again now that I have yet another diagnosis. I know that's not exactly true, as I've made plenty of progress with my mental health since 2006. It doesn't help that the resources to help adults with new autism diagnoses are very finite, at least in the city where I am.
 

ace3skoot

Member
Dec 3, 2018
815
in the before times I used to really love going to the cinema(movies) I have a season pass to our local theatre and I know its a little sad but I would go alone all the time, I could sit at the back of mostly empty screening and get completely absorbed, it was dark and cozy and safe.

This evening our local cinema(in the UK) opened for the first time in a year and my friend invited me to see Godzilla vs Kong on 2d iMAX. I was a bit nervous going out in public for the first time but figured it would be okay with my friends' support. To my horror, the sound was incredibly loud, intense, and overbearing. it felt like torture, I couldn't even hear the dialogue properly and I literally had to get up and walk out.

I had noticed recently I have been feeling distressed and anxious whenever there are loud noises, like sirens or a building site. I know it's probably dumb but I feel so sad and depressed, I had been looking forward to going back for so long, I feel like I'm losing a part of myself, and I don't know if I can ever get it back, I'm literally in tears writing this post, I guess I need to vent :(
 

Stop It

Bad Cat
Member
Oct 25, 2017
6,352
in the before times I used to really love going to the cinema(movies) I have a season pass to our local theatre and I know its a little sad but I would go alone all the time, I could sit at the back of mostly empty screening and get completely absorbed, it was dark and cozy and safe.

This evening our local cinema(in the UK) opened for the first time in a year and my friend invited me to see Godzilla vs Kong on 2d iMAX. I was a bit nervous going out in public for the first time but figured it would be okay with my friends' support. To my horror, the sound was incredibly loud, intense, and overbearing. it felt like torture, I couldn't even hear the dialogue properly and I literally had to get up and walk out.

I had noticed recently I have been feeling distressed and anxious whenever there are loud noises, like sirens or a building site. I know it's probably dumb but I feel so sad and depressed, I had been looking forward to going back for so long, I feel like I'm losing a part of myself, and I don't know if I can ever get it back, I'm literally in tears writing this post, I guess I need to vent :(
It's not dumb, but it's likely because you built up a tolerance of the really very loud sound of the cinema and you lost it in the lockdown.

Of course there's a help for that.

www.autism.org.uk

Cinemas - a guide for autistic adults

Practical advice for autistic adults focused around booking and going to the cinema.

Depending on where you are, your local cinemas may well have autism friendly showing which are nowhere near as loud and thus can ease you back into it.
 

Like the hat?

Member
Oct 25, 2017
5,577
I'm 36. My son is autistic and i have for a while suspected i am as well. My wife keeps telling me that in the autistic community, especially among adults, self diagnosis is valid.
I'm interested to know who has gotten a diagnosis as an adult and how it went for you. I can take a billion quizzes that all say the same thing, i can read about autism and experience it with my son and look back on myself and i can say without really any doubt that I'm autistic myself. However the severe impostor syndrome i deal with makes it hard for me to say it definitively.
 

Phil32

Member
Oct 28, 2017
4,568
I was diagnosed last year at 34, and here at least in Missouri, I don't know of any resources for someone like me. My psychiatrist has reached out to a major university in town, and there was no there who specialized in autism in adults. It's either kids or adolescents they work with. Could also be related to my lack of insurance as well, though.
 

ace3skoot

Member
Dec 3, 2018
815
After 2 years of pain and struggle, my work place has finally decided to terminate my contract on the basis returning would be detrimental to health and recovery. This means I'm finally free to engage with local charities and support structures to find appropriate training, work experience and hopefully eventually employment with the proper support. I know I'm extremely lucky to be where I am and the resources and support are not available for alot of people out there. I'm so happy after such a long time that I can make positive progress. I wanted to thank some of the kind people in this thread who gave me encouragement and kindness in some dark moments.
 

ace3skoot

Member
Dec 3, 2018
815
I'm 36. My son is autistic and i have for a while suspected i am as well. My wife keeps telling me that in the autistic community, especially among adults, self diagnosis is valid.
I'm interested to know who has gotten a diagnosis as an adult and how it went for you. I can take a billion quizzes that all say the same thing, i can read about autism and experience it with my son and look back on myself and i can say without really any doubt that I'm autistic myself. However the severe impostor syndrome i deal with makes it hard for me to say it definitively.
I was diagnosed last year at 34, and here at least in Missouri, I don't know of any resources for someone like me. My psychiatrist has reached out to a major university in town, and there was no there who specialized in autism in adults. It's either kids or adolescents they work with. Could also be related to my lack of insurance as well, though.

Hi, it can be extremely difficult to get help and resources, I'm afraid I live in the UK and am very fortunate to have a lot of free resources, my understanding of thee states is that its very much depends on the state you live in as what support is available to you.

Obviously, having professional help would be more ideal, but that doesn't mean you can't engage with, learn coping strategies, and benefit from self-help sources. there are many free online resources. To get you started click. https://autismtreatmentcenter.org/autism-resources/?gclid=CjwKCAjwz_WGBhA1EiwAUAxIcby-ubBe8Xg4ZDahVk-S7XNIO4Yvl7wxhFAdSqNQmL23CzUnmfnOPRoCJzsQAvD_BwE fill out this form and there is free information and course you can take.

some adult-specific resources https://www.aane.org/resources/adults/
 
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JonnyDBrit

JonnyDBrit

God and Anime
Member
Oct 25, 2017
11,026
Oh christ why did I miss those updates those are old; thanks ace3skoot and Phil32 for trying to pick up some slack in that regard
 
Jul 19, 2020
1,378
Rugby Warwickshire England
I am a British autistic person and I find it hard to start socialise because I find it really hard to start conversation with people I am unfamiliar and not comfortable with and because of that I don't have any friends that live near me.
Any help with that?
 

Rosebud

Two Pieces
Member
Apr 16, 2018
43,597
I'm such a failure, another year without graduating. Why I had to be born :(
 
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JonnyDBrit

JonnyDBrit

God and Anime
Member
Oct 25, 2017
11,026
I'm such a failure, another year without graduating. Why I had to be born :(

We need not be born with purpose, to have place.

What are you studying, if I might ask?

I am a British autistic person and I find it hard to start socialise because I find it really hard to start conversation with people I am unfamiliar and not comfortable with and because of that I don't have any friends that live near me.
Any help with that?

And sorry for a supremely late reply on this. While I'm... not really the best purpose to ask on that sort of thing - similarity of circumstances and results - aside of recommending talking to others on the National Autistic Society forums, I might ask if you have any particular subjects, passions, or other interests? I know one of the hallmarks of our condition is getting interested in some niche stuff, but depending on how you swing it, you'd be surprised by what people are willing to listen to.
 
Jul 19, 2020
1,378
Rugby Warwickshire England
We need not be born with purpose, to have place.

What are you studying, if I might ask?



And sorry for a supremely late reply on this. While I'm... not really the best purpose to ask on that sort of thing - similarity of circumstances and results - aside of recommending talking to others on the National Autistic Society forums, I might ask if you have any particular subjects, passions, or other interests? I know one of the hallmarks of our condition is getting interested in some niche stuff, but depending on how you swing it, you'd be surprised by what people are willing to listen to.
I am very interested in politics, Nintendo, Space, Disney, Pixar.
 
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JonnyDBrit

JonnyDBrit

God and Anime
Member
Oct 25, 2017
11,026
I am very interested in politics, Nintendo, Space, Disney, Pixar.

That middle one is one that can more readily allow you connect to others I would say. It can be a bit of an overwhelming topic, sure, but equally many are fascinated by the sheer scope and scale of the universe; it's full of little trivia details that you can pepper into and explain in a conversation, if granted the right context. You watching that Universe documentary with Brian Cox at all? That's relevant and up to date stuff that also means you're watching something current you can talk to people about
 
Jul 19, 2020
1,378
Rugby Warwickshire England
That middle one is one that can more readily allow you connect to others I would say. It can be a bit of an overwhelming topic, sure, but equally many are fascinated by the sheer scope and scale of the universe; it's full of little trivia details that you can pepper into and explain in a conversation, if granted the right context. You watching that Universe documentary with Brian Cox at all? That's relevant and up to date stuff that also means you're watching something current you can talk to people about
But how do I go out about finding someone to talk to?
 
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JonnyDBrit

JonnyDBrit

God and Anime
Member
Oct 25, 2017
11,026
But how do I go out about finding someone to talk to?

In this, you are going to have to look for available circumstances as they present themselves. Work. Visiting friends and family, or friends of family. Building your conversational skills =/= making friends, though the former can very much help with the latter. You look for the excuses to talk, though I realise in this I was afforded a comparatively good circumstance since working at a heritage site is a baked in excuse to talk about history, which is also a deep passion
 

Prax

Member
Oct 25, 2017
3,755
I did not get my Masters at all because I basically had my panic attacks/meltdowns for the very last bits even after finishing 95% of everything AND my thesis lol. And this is while getting extensions/retrying for 2 years to do the fieldwork. I just gave up in the end because my heart wasn't in it, decided I tried enough, and I could do something else.

No matter what, you have options to make your own way in life. You aren't born to do any one thing, so whatever you do, it's still your life.

I just work (or did. I am on maternity leave now) at a grocery store stocking shelves and it is cushy for me. My autistic friend, who hit rock bottom with a nasty divorce and custody battle also did grocery for a while before going back into more of a consulting for educational tech space.

Life might not always be easy for us, but it can be pretty decent and good anyway.
 
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JonnyDBrit

JonnyDBrit

God and Anime
Member
Oct 25, 2017
11,026
where a part
I haven't gotten a job yet, what should I do if I find a job overwhelming?

This is an area where a part time or temporary job can actually make some sense, though the sheer demand in current conditions is... hrm.

Anyway, my point is, with these sorts of matters I find it recommendable to be able to ease one's self in. A job can be, as you'd expect, demanding both mentally and physically. So, not committing yourself to the full, 35-40 odd hour working week (particularly by way of a zero hours contract where they suddenly want you in as often as possible), and instead going for something where you will more regularly have time off, can allow you to recover

It may also be a matter at looking at the nature of the job. While you're still working on developing your social skills, a customer facing role can be difficult - dealing with a potentially large array of strangers, many of whom may come with complaints you haven't expected or been trained for - as much as it may also be an ability to develop said skills by giving you people to interact with. In contrast, warehouse work can be fairly regular, routine, and with a confined number of people, but it's also physically strenuous and the environment potentially isolating.

Hell, if you want none of that pressure, perhaps volunteer somewhere initially. Somewhere that lets you get used to some of the functions of work, but without the same expectations

In my case, I took a year out before Uni and did various odd jobs. My first was as a temp cleaner over Christmas, though that benefited from the fact I actually did much of the washing up of dishes in sixth form, and otherwise actually did some basic chores at home

Edit: Either way, don't just leave it in the abstract of 'a job'. Look at how you would want to be able to manage it and yourself, what opportunities in your area are and what they would or wouldn't demand of you. Hell, maybe look at Apprenticeships as something where the whole point is that they specifically train you, rather than worry for a lack of skills
 
Jul 19, 2020
1,378
Rugby Warwickshire England
where a part

This is an area where a part time or temporary job can actually make some sense, though the sheer demand in current conditions is... hrm.

Anyway, my point is, with these sorts of matters I find it recommendable to be able to ease one's self in. A job can be, as you'd expect, demanding both mentally and physically. So, not committing yourself to the full, 35-40 odd hour working week (particularly by way of a zero hours contract where they suddenly want you in as often as possible), and instead going for something where you will more regularly have time off, can allow you to recover

It may also be a matter at looking at the nature of the job. While you're still working on developing your social skills, a customer facing role can be difficult - dealing with a potentially large array of strangers, many of whom may come with complaints you haven't expected or been trained for - as much as it may also be an ability to develop said skills by giving you people to interact with. In contrast, warehouse work can be fairly regular, routine, and with a confined number of people, but it's also physically strenuous and the environment potentially isolating.

Hell, if you want none of that pressure, perhaps volunteer somewhere initially. Somewhere that lets you get used to some of the functions of work, but without the same expectations

In my case, I took a year out before Uni and did various odd jobs. My first was as a temp cleaner over Christmas, though that benefited from the fact I actually did much of the washing up of dishes in sixth form, and otherwise actually did some basic chores at home

Edit: Either way, don't just leave it in the abstract of 'a job'. Look at how you would want to be able to manage it and yourself, what opportunities in your area are and what they would or wouldn't demand of you. Hell, maybe look at Apprenticeships as something where the whole point is that they specifically train you, rather than worry for a lack of skills
Thanks for the advice, I won't be looking for a job quite yet because I want to focus on my education.
If still felt overwhelmed even after being at a Job for a while, should I leave it?
 
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JonnyDBrit

JonnyDBrit

God and Anime
Member
Oct 25, 2017
11,026
Thanks for the advice, I won't be looking for a job quite yet because I want to focus on my education.
If still felt overwhelmed even after being at a Job for a while, should I leave it?

It'll definitely depend on the circumstances available to you, though that is one of the inherent difficulties with work. It's a frustrating thing to realise, but being able to leave a job without, say, having the concerns of how it'll impact Universal Credit is a potential privilege; if you do have to factor that in, well, you have to factor that in, because unfortunately income does dictate personal stability and comfort, and in turn, how well we cope

But, if that option is there, it is worth keeping in mind as an option. Because by the same token, holding yourself to a job that will wear down your ability to function when you legitimately have the option not to, is a little self-defeating. So, yeah, measure the circumstances you find yourself in
 

Weiss

User requested ban
Banned
Oct 25, 2017
64,265
It's been like two and a half months of this ADHD med roulette bullshit.

I was happy a few weeks, my brain was normal. Now it's gone. I guess that happens when you start? You feel it all at once, your brain adjusts, so even an incremental dosage increase feels like nothing.

Fuck, I think I'm messing it up. Gotta make my Vitamin D and B12 every day, get the fuck away from caffeine forever it always fucks me up.

Just gotta write this somewhere so it's there and I can see it. Won't forget it.
 

Linkie3

Member
Feb 8, 2019
232
I am looking for some online gaming friends (since i don't have them, and my irl friends play different games then i do), but i don't know where to start. I'm to afraid to just add strangers on discord since i had bad luck in the past by being bullied for being bad at games (honestly i'm not that good at most games). I looked for a place here where i could ask, but i didn't find a general asking for gaming friends topic here. And i don't know if its against the rules to open an topic for it. Btw i have ASS before anyone asks.
 
Jan 10, 2018
6,927
Just got diagnosed with autism, at age 35. My life has been a real roller-coaster from time to time (especially love wise) so I'm happy that I will now get some care and much needed insight. My psychatrist has reached out to the hospital where I will continue my therapy and I've also been handed a book about dealing with autism at an adult age. I'm in a good place in life in general so I'm looking forward to all of this. Also nice to find that this community on Era exists!
 
Oct 27, 2017
1,565
Ireland
I'm 39 and I also just got diagnosed with autism, I was only told this morning. While it does explain certain things, I'm not sure what to do now. I live in Ireland. As someone who was born and raised as a girl (but identifies as a man now), I think while I was growing up, people were happy to ignore me as I preferred to sit by myself reading.
 
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JonnyDBrit

JonnyDBrit

God and Anime
Member
Oct 25, 2017
11,026
I live in England, I don't have any money any recommendations if I wanted therapy?

Difficult because, yeah, our general infrastructure is generally tilted heavily towards children, nevermind the issues and backlog in such

You're likely going to have to narrow it down by your specific location, as well as look at options for either getting (additional) financial support, or an exemption on traditional costs, though the latter is pretty slim odds

Have you tried to approach the National Autistic Society for guidance? They don't provide such services themselves, I believe, but they manage directories and such, so a volunteer might be able to push you along in the right direction
 
Jul 19, 2020
1,378
Rugby Warwickshire England
Difficult because, yeah, our general infrastructure is generally tilted heavily towards children, nevermind the issues and backlog in such

You're likely going to have to narrow it down by your specific location, as well as look at options for either getting (additional) financial support, or an exemption on traditional costs, though the latter is pretty slim odds

Have you tried to approach the National Autistic Society for guidance? They don't provide such services themselves, I believe, but they manage directories and such, so a volunteer might be able to push you along in the right direction
Would it be via email for the NAS, live chat etc?
How would I approach them for this?
 
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JonnyDBrit

JonnyDBrit

God and Anime
Member
Oct 25, 2017
11,026
Would it be via email for the NAS, live chat etc?
How would I approach them for this?

There's numerous methods:
www.autism.org.uk

Help and support

Useful links to key information such as urgent help, advice and guidance, Autism Services Directory, branches and our online community.

This is their specific page on Seeking help with mental health:
www.autism.org.uk

Seeking help with mental health

Seeking help with mental health

If these aren't satisfactory or clear enough to work with, find what would be your closest branch on this list:
www.autism.org.uk

Branches

Our volunteer-led branches across the UK offer support, information and social activities for autistic children, adults and their families.

And it will provide both an email and a phone number, and you can try to use either to get in touch
 
Jan 10, 2018
6,927
Does anyone else have a hard time taking initiative or be the leader in a group? I have zero problem knowing what to do when I'm by myself but as soon as someone else gets involved I'm like slipping away in the background and hands over all the charge. This is becoming an issue for me in my work because I get exhausted with everyone just leading me into all these things. I'm constantly conflicted about wanting to take initiative but I don't understand how. I don't have this feeling of wanting to take initiative and I certainly don't know how to do it smoothly. I'm kind of afraid of stepping on someone or maybe be the main person to blaim if something goes wrong.

Does anyone else feel like this? I don't know really what to do as this is such a big part of my mentality and I'm afraid to challenge myself too much. I feel like I have to do though as my work kind of demands it.
 

simplywave

Member
Aug 24, 2019
4
I thought I'd break my posting duck and post in here.

I started therapy a year ago and have been on a voyage of personal discovery ever since.

Two months into the therapy, my therapist (a clinical psychologist) said, "it is clear that you are a neurodivergent person trying to navigate a neurotypical world."

I was taken aback, as neurodivergence is and was not something I'd ever considered — neither about myself nor in life in general.

Since then, the notion has been dipping in and out of my consciousness. Some days, when I think about the possibility — which looks likely, the more I learn — the more it makes sense. I look back on 41 years of life and think, "so *that's* why I behaved like that/felt like that" and it's as if a detective finding the culprit in an ongoing case of depression, anxiety, need for autonomy, rejection dysphoria, lack of eye contact, aversion from this and attraction to that. It's fascinating.

Especially interesting to me this week and last is the general sense of ... I don't know how to phrase it, as the concept is vague even in notion — a sense of unease that has permeated my entire life.

It is especially bad about structure and institutions (school, workplaces) but permeates beyond that. Like I am subject to forces, pressures, that are just ... out there. I don't mean in an X-Files sense: I just mean I've always felt, most of the time, albeit with occasional rays of sunshine, under a cloud or a ceiling, or pushed along subtly somehow against my innate will.

Again, I don't have the words to put to it, as I don't yet have the thoughts to put to it — but hopefully with time that will come as it will take shape in my mind. (But if anyone here has already done the workings-out and I can copy their work, so much the better!)

I'm due an ASD assessment within the next 4 months.

It is galling and satisfying to appreciate the unknown fear felt throughout life is because I perceive the world in ways substantially different from those around me — a world shaped by neurotypical homo sapiens, doing as our species has en masse evolved to do, into which my thoughts and behaviours don't comfortably slot.

I am starting to think now that I feel fear a lot of the time because of inherent discomfort with regards to uncertainty, which no amount of therapy or medication or self-talk will ever root out. Also perhaps because of environments, or lights and sounds, or the imposition of schedules, or even what and how people say the things to me they do — things that the neurotypical perceive as just fine, but to me are abrupt or rude or upsetting.

(And that's not even to get into masking and social settings and the pondering that my outward personality — possibly my inward one, too, as I've come to know it — has been fabricated to fit into whatever milieu I happen to be have been inhabiting at that stage of life. Perhaps all of my interests in, say, sport or food, have been developed to "get along" in a social setting, and in fact have no inherent value or meaning to the real me at all. It's really quite hard to unpick.)
 

viciouskillersquirrel

Cheering your loss
Member
Oct 25, 2017
2,874
I thought I'd break my posting duck and post in here.

I started therapy a year ago and have been on a voyage of personal discovery ever since.

Two months into the therapy, my therapist (a clinical psychologist) said, "it is clear that you are a neurodivergent person trying to navigate a neurotypical world."

I was taken aback, as neurodivergence is and was not something I'd ever considered — neither about myself nor in life in general.

Since then, the notion has been dipping in and out of my consciousness. Some days, when I think about the possibility — which looks likely, the more I learn — the more it makes sense. I look back on 41 years of life and think, "so *that's* why I behaved like that/felt like that" and it's as if a detective finding the culprit in an ongoing case of depression, anxiety, need for autonomy, rejection dysphoria, lack of eye contact, aversion from this and attraction to that. It's fascinating.

Especially interesting to me this week and last is the general sense of ... I don't know how to phrase it, as the concept is vague even in notion — a sense of unease that has permeated my entire life.

It is especially bad about structure and institutions (school, workplaces) but permeates beyond that. Like I am subject to forces, pressures, that are just ... out there. I don't mean in an X-Files sense: I just mean I've always felt, most of the time, albeit with occasional rays of sunshine, under a cloud or a ceiling, or pushed along subtly somehow against my innate will.

Again, I don't have the words to put to it, as I don't yet have the thoughts to put to it — but hopefully with time that will come as it will take shape in my mind. (But if anyone here has already done the workings-out and I can copy their work, so much the better!)

I'm due an ASD assessment within the next 4 months.

It is galling and satisfying to appreciate the unknown fear felt throughout life is because I perceive the world in ways substantially different from those around me — a world shaped by neurotypical homo sapiens, doing as our species has en masse evolved to do, into which my thoughts and behaviours don't comfortably slot.

I am starting to think now that I feel fear a lot of the time because of inherent discomfort with regards to uncertainty, which no amount of therapy or medication or self-talk will ever root out. Also perhaps because of environments, or lights and sounds, or the imposition of schedules, or even what and how people say the things to me they do — things that the neurotypical perceive as just fine, but to me are abrupt or rude or upsetting.

(And that's not even to get into masking and social settings and the pondering that my outward personality — possibly my inward one, too, as I've come to know it — has been fabricated to fit into whatever milieu I happen to be have been inhabiting at that stage of life. Perhaps all of my interests in, say, sport or food, have been developed to "get along" in a social setting, and in fact have no inherent value or meaning to the real me at all. It's really quite hard to unpick.)
Regarding the last bit about the identity crisis you get when you realise you've been masking for years - my advice is don't think too hard about it. Just be.

When you get right down to it, almost all our behaviour, perception of what is good, bad, enjoyable, acceptable, disgusting or boring is shaped by our society and the expectations put on us. Why is pink a girly colour? Why do you like the taste of beer? Why do we line up in queues? Why do we play one sport and not another?

There is no such thing as an "authentic" inner self. Not as a tangible, fixed thing, at least. A search for your soul will drive you nuts if you dwell on it.
 

simplywave

Member
Aug 24, 2019
4
Thanks -- I'll remember that advice.

I guess because I am looking back on my life through this new lens, it is making me wonder where autism starts and the rest ends. I know there is no answer to this, and probably no underlying scientific truth to any of it, but I find myself getting lost in thought (not in an unpleasant way).

For instance, am I introverted purely by personality, or introverted because I am autistic and I have learned that keeping myself to myself is the least stressful way of navigating the world -- e.g. it is a conditioned behaviour that just looks like personality? And e.g. do I hate playing boardgames by personality, or because being autistic makes the imposed rules and structures of boardgames off-putting?

Again, I suspect there is no answer to this, but it doesn't stop me wrestling!

Don't get me wrong -- I am happy to be me, and I count myself extremely lucky that I have navigated this far in life and settled into a good place.

It makes me sad to think of others, who like me didn't or don't know they are autistic, and never will, struggling through work and society and finding it so hard, developing depression and anxiety as consequence -- when with diagnosis they might attain some self-understanding, some self-acceptance, and find it easier to settle, as you say, into just being.
 
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